Patient and Community Education Liaison

Multiple openings

ABOUT THE FLOCK

As a member of the bluebird Patient and Community Education Liaison (bPACE) team you will be working alongside some of the most committed and passionate individuals in the industry to ensure we continue to bring creative solutions to patients living with Severe Genetic Diseases (SGD). As a member of the bPACE team, you will ultimately help empower patients and caregivers with tools and educational materials that help them navigate their disease, the healthcare ecosystem and decision making. The bPACE field team will be responsible for providing patients and caregivers living with sickle cell disease (SCD) and beta thalassemia (BT) with meaningful educational resources primarily focused on of the management and progression of the disease(s) and gene therapy. This individual will help identify relevant and actionable patient insights at a local/regional level relevant for the execution of the brand plan. You will serve as a catalyst for identifying the patient voice and perspective to drive bluebird bio’s decisions through meaningful engagement. You will become a trusted partner in the patient community by bringing value to them through relevant education.

HOW YOU’LL FLY

You’ll help to bring patients and their families more bluebird days by:

• Helping synthetize educational opportunities identified within patient community across your geography.
• Delivering patient/caregiver educational materials and content on gene therapy, disease state/disease progression and approved products at patient focused educational events, including those led by community-based organizations and/or hospitals/institutions.
• Closely collaborating with patient advocacy team in supporting and engaging with SCD warriors and patient advocates to help uncover educational needs and opportunities for partnerships.
• Supporting patient advocacy at local patient community events and in the delivery of approved educational materials.
• Identifying patient and caregiver educational gaps and insights that help inform the refinement and development patient education resources.
• Working with and informing cross functional partners, in educational unmet needs and challenges collected from patient insights.
• Developing and maintaining expertise on gene therapy, Hemoglobinopathies (including transfusion-dependent thalassemia (TDT) and sickle cell disease (SCD)), and Hematopoietic Stem Cell Transplant

WHAT YOU’LL BRING

You’re the bird we’re looking for if you have:

• Bachelor’s degree (required), Advanced degree preferred and 8+ years of experience in healthcare industry.
• Prior experience in patient education, clinical setting, pharmacy, community health education, and/or pharmaceutical/biotech industry is a plus
• Experience in Sickle Cell Disease therapeutic area preferred.
• Prior experience in rare disease, oncology/hematology and or transplant center experience preferred but not required.
• Passion and ability to establish relationships with patient community and caregivers
• Demonstrated communication skills, including ability to deliver and present educational materials to patient community
• Ability to work cross functionally and effectively collaborate with various part of the bluebird organization and field facing teams
• Strategic mindset to identify and summarize key insights relevant to the patient/caregiver strategy.

This is a field based role. Travel is as required by business. Approximately 40-50% local/regional travel required for patient and community meetings/congresses.